Unique Imelda

Please see

justgiving.com/campaign/uniqueimelda

 Imelda is the daughter of one of our founder members Rachel who was carrying Imelda when the club first started. Ime is now 8 years old. We have supported "Unique Imelda" raising monies from our gigs and book sales. Please read below about her, and thank you for your continued support.   

Imelda is an amazing, determined little girl, who given the opportunity knows NO limits. With the right medical care, therapy and equipment, she keeps surprising everyone with her ability to learn and defy the odds of her situation. Her biggest challenge is access to services and equipment, as the NHS is so underfunded and services are either not available or overstretched. 

Therefore, Imelda relies heavily on privately funded therapy and equipment, without which she would have a very different quality of life today.

Imelda has a unique chromosome disorder shes one-off! This shows itself in global development delay, hypotonia and infantile scoliosis for which she wears a brace for 22 hours a day to control the curve from progressing. Her epilepsy and kidney reflux are managed with daily medication and shes learning to cope with nystagmus and a hearing impairment with regular check ups. She struggles with sensory processing disorder which affects the way she moves, eats, drinks and plays. She is under the care of many teams at Great Ormond Street Hospital.

And this is where you come in - every penny donated to Just4Children goes directly into therapy and equipment for Ime, giving her the best possible chance in reaching her potential.

Imelda attends Footsteps Therapy centre in Oxford and Abilities Therapy in Chelmsford for Physio and Speech and Language. Costs are between £75 and £100 per hr. It’s vital we keep up with her therapy now she has had her hip reconstruction surgery. We believe she will be able to talk and walk unaided one day with the right input.